Monday, July 14, 2014

Summer Fun

     We started off the summer with Amelia's first birthday.  We had a baby's first birthday luau at a private beach.  It was so much fun.  It was kind of like a party for Rachel too, since most of her friends came.  A few weeks later we had the Great Strides Honolulu walk.  We (Rachel's Rangers) raised over $3,000.  I was pleased with that since I really didn't put much effort into my fundraising.  That night we (the girls and I) flew to NV to celebrate my sister's college graduation.  Mom also flew out.  It was so nice to see them both and do fun things together. I took Rachel to Sacramento to visit where she was born and see the first place she lived.  She seemed to really enjoy that.  We also met up with some of our CA friends.  While in NV at my sister's house, I took the opportunity given to me and did a little farm/desert photo shoot of the girls.  A few days after returning home, we put the house on the market.  Let me just say, "That's a chore!"  Once the house was listed, we all got sick.  Rachel's illness was going away so,I took her to the doctor.  It turned out that she had a sinus infection.  That's a first for her.  After everybody getting healthy, Rachel and her friend have been taking swim lessons and Tahitian together.  It's been busy, busy, busy as usual. I've posted a several pics of some of Rachel's summer fun.

Fun in the sprinkler on our little
patch of grass.

Amelia's hula girl b-day cake.
We had to have Barbie auditions;
our first choice was too tall!

The birthday girl.
Lucky girl to have a party
at such a beautiful place.

Rach out with all her friends.

Enjoying her birthday cake.

Great Strides
By her storyboard.

Great Strides
Cooling off with Aloha Pops.

Amelia took over my Aloha Pop.

My sis the graduate.

All of us together.
After, we treated her to lunch.

My Rach

She really wanted a picture with hay in her mouth.

If Rach wasn't in the house,
she could always be found with the horses
or goats.

Collected the eggs.

One of many pictures taken in the
beautiful desert.

Another Rachel in the desert pic.

In Sacramento at Fairytale Town.
We met friends here.

The first house Russ and I bought.
Rachel's first home.

Pigmy goat born when we were at my sister's. 

Amelia like the goats too.

Going for a ride with Aunt Teresa.......
somewhere on the farm.

Amelia got a little horse action, too.

A common sight.
Always finding Rachel there with the horses.

My sweets!

Cousin Phillip taking Amelia for a ride.

Phillip on his horse.

Rachel; happy as a clam....atop a horse.

Sister's enjoying a ride together.

PVC sword fight with cousin Phillip.

Last and roasting marshmallows. 
My babies.
Just love them.

Tuesday, May 6, 2014

Great Strides 2014 Around the Corner

Great Strides 2009
The first walk I was thrown into organizing solo!

      Great Strides Honolulu 2014 is just around the corner.  I've been fundraising for a while and am only $156 away from my $3,000 goal.  I'm really hoping to meet the goal.  If you don't have a charity that you donate to, might I suggest donating to our Great Strides team.  You can help fund research to create new drugs/therapies (& hopefully one day the cure) to improve & extend the life of Rachel and may others with cystic fibrosis. 

If you'd like to donate to our team, click the link below to get to our team donation page: 

Thank You!

Great Strides 2013

Monday, April 14, 2014

"Hey, Jessie!"

Debby Ryan's
dressing room.

On April 3 Rachel got her wish granted.  She got to meet her favorite actress, Debby Ryan (from the Disney show "Jessie").  The Make-A-Wish foundation granted Rachel's wish.  In addition to meeting Debby (& actually the entire cast of the show), Rachel got to do many other activities; going to Six Flags and iFly Hollywood were her favorites.  Rachel is very thankful and thrilled that she got this once in a lifetime trip/opportunity.  
(I couldn't put any photos of Rach with the cast because they were filming the season finale & it could give it away.)....after the finale airs I'll post some more pics.
Thank you Make-A-Wish Hawaii, it's volunteers, & everyone else that made Rachel's wish come true. .... ..
Dr. Edwards for the referral, Emily & Kale'a (Rachel's wish granters;they were perfect for Rachel), Dave and Buster's for the awesome send off party & amazing gifts, Hawaiian Airlines for the fantastic in flight shows, dessert, & cockpit tour, Anthony the LA limo driver that gave Rach a cuddly teddy bear, and the LA Make-A-Wish greeter for meeting us at the airport & the nice gift.

Emily & Kale'a
Rach's wish granters

Gifts from Dave and Busters
send off party

Jessie set

In the elevator

"Tony" the doorman

in the "screening room"

Central Park

Empire Skate Building
Central Park

Jessie's bedroom

Jessie's bedroom

Ms. Kipling

iFly Hollywood
Universal City

iFly Hollywood
Universal City

Eating at one of her favorite restaurants
"The Melting Pot"

Thursday, February 27, 2014

I'm a Slacker

     This past year has been so, hospital visits/admissions, homeschool, after-school activities, holidays, making craft sets/gifts for Tripler's pediatric ward, and then lots of visitors.
     I've been busy, yet a slacker in doing my part for the Great Strides walk.  Really I'm so fed up with CF and had begun to get burnout with the whole planning of the walk that now I'm not interested anymore.  I'm still fundraising but only half@ss!
     If there was ever a time for me to be happy about getting the walk together it should be now.  Now, that a friend has taken the reigns and I don't have all the responsibility.  All I have to do it send a few emails and make a few phone calls.  That's it!  Easy....I know. I just don't want too!
    I think I need a break.....a break from being so involved with any CF related events.  I will still go but I want to just show up and enjoy the festivities......Like everybody else does....CF'er, CF parent, or not.
    I have mostly enjoyed organizing the walk and have definitely enjoyed watching it grow.
    Anyway,, that's my rant.

Rach at GS 2013
with Star Wars characters.

Wednesday, February 5, 2014

Long Time No Post!

Sisterly Love
     Wow!  Where do I start?  October was my last post. Since then Rachel has had her second admission at Tripler & home on iv's, the baby had to have a head CT, Rach had a bronchoscopy, we had Rachel's uncle visit, surfing with Mauli Ola, breakfast with Santa, busy Christmas time, Auntie and GG visit, & Nana and Gramps visit.  I'm tired!  Loved having the visitors but I'm a little tired of crap stuff happening.
     Rachel's Tripler admission was by far much better than the first.  I eliminated the huge problem I had the last time.  I requested to do Rachel's breathing treatments and chest therapy, so respiratory therapy was out of the picture. I also had another request which was.....- no new or inexperienced nurses.  As far as dietary or shall I say the "kitchen/cafeteria", I figured I'd surrender and bring in a gallon of whole milk for Rachel.  And was really an issue.  Rach spent 6 days in the slammer and came home on iv's the night before Thanksgiving.  Can I just tell you how "Thankful"  I was (I'm sure Rachel too) to just be home with my family on Thanksgiving?!  It puts it all into perspective.  We ended up with a warm welcoming invitation to our friends house for Thanksgiving.  One of my dear friends and Rach is good friends with her daughter.
     Amelia had to have a head CT because the doctor suspected her head was prematurely fusing.  Of course I was a little worried about that.  She had to go in through the pediatric sedation center.  She's just a baby and can't be still so she had to be sedated.  Always scary to me.  I always worry about my precious kiddos getting too much sedation medication.  It turns out she's fine.
     Rachel had her bronchoscopy and picc line taken out about a week or so before Christmas.  A good day because Rachel got her picc out and the doctor said her lungs look good.  Or course as I mentioned,  I worry because she had to be sedated.  I've got to tell you......Rachel is a hoot when she's coming out of sedation.  She's funny to begin with but...oh she funny waking up.
     Rachel's uncle visited for the first time.  We've been here 6 years and he finally made it.  We all had fun showing him around the island.
     Rachel went surfing again with Mauli Ola.  She's always enjoyed everyone she been surfing with but she does have her fav's.  She got to surf with Kala. He's one of her first surfing experiences.  He's always been so nice to Rachel and she just loves him.
     Breakfast with Santa was fun.  I wasn't thrilled that it had to be breakfast but I got over it.  Friends of ours were there too.  It was at Dave and Busters, so after meeting with Santa and breakfast we all had fun playing games and hanging out with friends.
    In the middle of everything happening, I had to finish up on some continuing education for my Occupational Therapy license.  Thank God for online classes!
     Aunt Chris and GG & Nana and Gramps came to visit.  They are always so fun to be around. Like with uncle we had fun taking them places and hanging out around the house.
     So now, all the busy and chaos has settled.  Rach is back in school full force. We are back to snorkeling and biking.....Amelia goes with us (in her baby seat on my bike, cute helmet, sunglasses and pacifier).  Parks and Rec classes have started again.  This time Tahitian and volleyball. Rachel is still going to AWANA & will be finishing her book early.
    I'm hoping things will be quiet for a while.
   Anyway, that's what's been going on around here.  Now maybe I can keep up with this blog and my food blog.  I've got lots of catching up to do with housework and with my friends.

Rach and Amelia with Kala